Well it’s been a really rough few days and I really don’t remember when I last posted or what I wrote. Between the stress of the situation here and the iffy internet, I’m not sure when I last posted or what I wrote. We are both absolutely exhausted – Lorne more physically, and me more emotionally exhausted. On Monday Lorne had his second infusion of lymphocytes and his first injection of dendritic cells. Oh lordy it was a looooong night. He is just having so many issues it’s hard to pinpoint what is going on. I am just going to say that Lorne took a turn for the worse, way worse. What started at home that we thought was just part of the cold that was going around, turned into something completely different and very scary. The common cold can turn into a number of catastrophes for cancer patients.
There are plenty of doctors here looking at the myriad of tests he’s had done to try and get to the bottom of it. In the meantime, he is on liquid nutrition and an NG tube was put in (very begrudgingly) to help relieve the growing pressure in his abdomen which has also stopped the vomiting, thankfully.
Our concern now is to finish the treatments and get home! We have 2 more vaccines to get through, one today and one on Friday. I don’t want to come all this way and spend so much money, and come home without finishing treatment… again. The doctors here all say going home this Saturday is still possible so long as he is stable enough to handle the journey, which we’ve done before right after the surgery in November. That was quite the struggle to get through. But this time, there hasn’t been any surgery so we don’t have all the stitches and such to deal with, but we will still have the weakness and possible the NG tube might still be in.
Lorne is tenacious and has his heart set on going home on Saturday, so you best bet he’s gonna make every effort. I am having him get up and walk for 5 min. every 30-40 minutes and we’ve done that about 5 times today already and we will do it another 5 times before he goes to sleep. Tomorrow we will shoot for 5 min of walking every 15-20 min. and hopefully, by Saturday, he’ll have enough strength to get through the journey home.
We may have to continue this saga once we get home. He still can’t eat so he’s fed intravaneously, which we are not prepared to deal with at home. Right now, it’s one day at a time, which is really about all I can handle right now anyways. And for him, it’s pretty much minute by minute.
I am so proud of how hard Lorne is fighting this awful demon, and I am so thankful that I get to go support him through this journey, along with all of you. I hope and believe we can win this war, but I will never let him endure a single battle by himself. I honestly don’t know how anyone could do this alone.
Take care all,
Sean